Disabled, or just desperate?
BEAVERTON, ALA.
The lobby at the pain-management clinic had become
crowded with patients, so relatives had gone outside to their trucks to
wait, and here, too, sat Desmond Spencer, smoking a 9 a.m. cigarette and
watching the door. He tried stretching out his right leg, knowing these
waits can take hours, and winced. He couldn’t sit easily for long, not
anymore, and so he took a sip of soda and again thought about what he
should do.
He hadn’t had a full-time job in a year. He was
skipping meals to save money. He wore jeans torn open in the front and
back. His body didn’t work like it once had. He limped in the days, and
in the nights, his hands would swell and go numb, a reminder of years
spent hammering nails. His right shoulder felt like it was starting to
go, too.
Disabled America:
Between 1996 and 2015, the number of working-age adults receiving federal disability payments increased dramatically across the country — but nowhere more so than in rural America. In this series, The Washington Post explores how disability is shaping the culture, economy and politics of these small communities.
Between 1996 and 2015, the number of working-age adults receiving federal disability payments increased dramatically across the country — but nowhere more so than in rural America. In this series, The Washington Post explores how disability is shaping the culture, economy and politics of these small communities.
But did all of this pain mean he was disabled? Or was he just desperate? He wouldn’t even turn 40 for a few more months.
An hour passed, and his cellphone rang. He picked it
up, said hello and hung up — another debt collector. He rubbed his
right knee. Maybe it would get better. Maybe he would still find a job.
His mother had written a number the night before and
told him to call it, and he had told her he’d think about it. She
wanted him to apply for disability, like she had, like his girlfriend
had, and like his stepfather, whom he now saw shuffling out of the pain
clinic, hunched over his walker, reaching for a hand-rolled cigarette.
Spencer got out of the truck. He lit his own.
“Remember we were talking about it last night?” he asked Gene Ruby. “Remember we were talking about signing up?”
“Yeah,” said Ruby, 64.
“Remember Mama said there was a number you got to call?”
“She’s got the number,” Ruby said. “The Social Security number.”
Spencer kept asking questions. What would Social
Security want to know? How often are people denied? But he didn’t
mention the one that had been bothering him the most lately: Was he a
failure?
“There’s a stigma about it,” Spencer said, thinking
aloud. “Disabled. Disability. Drawing a check. But if you’re putting
food on the table, does it matter?”
Then: “I could probably still work.”
He put his stepfather’s walker in the truck bed, got
behind the wheel, started another cigarette and, pulling out of the
pain clinic’s parking lot, headed for home.
Across large swaths of the country, disability has
become a force that has reshaped scores of mostly white, almost
exclusively rural communities, where as many as one-third of working-age
adults live on monthly disability checks, according to a Washington
Post analysis of Social Security Administration statistics.
Rural America experienced the most rapid increase in
disability rates over the past decade, the analysis found, amid broad
growth in disability that was partly driven by demographic changes that
are now slowing as disabled baby-boomers age into retirement. The increases have been worse in working-class
areas, worse still in communities where residents are older, and worst
of all in places with shrinking populations and few immigrants.
All but three of the 136 counties with the highest rates — where more than one in six working-age adults receive disability — were rural, the analysis found, although the vast majority of people on disability live in cities and suburbs.
The counties — spread out from northern Michigan,
through the boot heel of Missouri and Appalachia, and into the Deep
South — are largely racially homogeneous. Eighteen of the counties were
majority black, but the remaining counties were, on average, 87 percent
white. In the 2016 presidential election, the majority-white counties
voted overwhelmingly for Donald Trump, whose rhetoric of a rotting
nation with vast joblessness often reflects lived experiences in these
communities.
Most people aren’t employed when they apply for
disability — one reason applicant rates skyrocketed during the
recession. Full-time employment would, in fact, disqualify most
applicants. And once on it, few ever get off, their ranks uncounted in
the national unemployment rate, which doesn’t include people on
disability.
The decision to apply, in many cases, is a decision
to effectively abandon working altogether. For the severely disabled,
this choice is, in essence, made for them. But for others, it’s murkier.
Aches accumulate. Years pile up. Job prospects diminish.
“What drives people to [apply for] disability is, in
many cases, the repeated loss of work and inability to find new
employment,” said David Autor, an economist with the Massachusetts
Institute of Technology who has studied rising disability rates. “Many
people who are applying would say, ‘Look, I would like to work, but no
one would employ me.’ ”
While disability rates for working-age people
have increased nationwide since 2004, rural counties have seen the
steepest increases overall.
In that position now, Spencer, a slight man with
luminous blue eyes, drove deeper into western Alabama. He steered
through Walker County, where nearly one in five working-age adults are
on disability, and into Lamar County, where the disability rate has more
than doubled over the past 20 years, arriving in the town of Beaverton,
population 273, where even the 55-year-old mayor is drawing a
disability check.
He pulled up to a small house alongside a quiet
country road, got out and looked around. There was only forest and hills
and sun.
“Man, I love it out here,” he said.
“Ain’t going nowhere,” Ruby agreed.
Spencer, who wears mud-caked boots and camouflage
and brags of burning trash “like a proper redneck,” has grown so
enamored of rural life that he’s sometimes surprised when he remembers
that he spent most of his life elsewhere. He grew up just outside of
Peoria, Ill., dropped out of school at 14, secured his GED, served two
stints in prison for felony burglary before he turned 20 and started
working roofing jobs, following other family members into manual labor,
like his grandfather who built bridges, and his mother, who worked at a
stove factory.
His work as a roofer had been a constant thread
through his life, from one state to the next, one job to another. And so
it had been again in 2005 when he followed family members to Lamar
County, which is 86 percent white and 11 percent black, and was then
navigating a long decline in population and manufacturing jobs — one
plant moved to Mexico, another to the Dominican Republic. He nonetheless
found a roofing job quickly, settling into a life that, for a time,
felt as safe as it was comfortable. But then came the recession, and the
uneven recovery, and jobs started drying up, and four years ago, as the
county poverty rate climbed to 24 percent, the roofing company let him
go.
He figured he’d find more work right away. But weeks
became months, and he started doing what he calls “odds and ends” —
work as a welder, a ranch hand, even a full-time garbage collector — but
nothing restored the stability that had gone missing.
He opened the front door to his house. He walked
past a small sign in a living room cabinet that said, “BELIEVE in the
beauty of your dreams,” and into a bathroom that he had recently
remodeled and where another sign said, “DON’T QUIT: Stick to the fight
when you’re hardest hit; it’s when things seem worst that you must not
quit.”
He had been reading a book lately about the power of
positivity. He would sometimes think about it when putting in job
applications, or when he was behind his house, looking at his
possessions. There was the old Kia that hadn’t run in two years. The
pile of aluminum cans for which he’d make 40 cents on the pound. The
dozens of used tires a repair shop had paid him to haul away. He never
knew what would turn out to be worth something.
He was blessed, he always tried to remind himself.
But increasingly there were days when Spencer knew
he was faking a belief, once so strong, that everything would work out.
There were days like today, when he sat in a pew in a small church in
Lamar County, listening to members of the congregation ask for prayers
for health issues:
“My mother-in-law is in the hospital this week, and she has some heart problems,” a man said.
“My body is not cooperating with my job whatsoever,” a woman said.
“I got my back surgery,” another man said. “I hope it takes this time.”
An hour later, Spencer was home again. His knee was hurting once more, as it had on and off ever since he fell from a roof during a construction job two years ago. He’d never had it checked out because he’d never had insurance, and he didn’t mention it now because everyone at the house seemed worse off than he was. His mother, Karen Ruby, 60, who has cirrhosis of the liver, was sitting at the kitchen table with her head in her hands, saying, “I don’t know when I’m going to be able to get back into church.” His stepfather was stooped beside her, next to a wheelchair, smoking a cigarette. His girlfriend, Tasha Harris, 34, a thin, ashen woman whose back was often thrown out, was upstairs in the dark after leaving church early because she hadn’t felt well.
“I need angel food cake,” his mother told him before he headed out to the store. “Write it down.”
“Angel food cake? All right, I’ll be back,” he said, walking toward the door.
“I feel like crap,” said Harris, who had come downstairs to see him off.
“I’m sorry,” Spencer quietly told her, then went outside to his truck and pulled onto the road.
“Desmond?” she said, her voice raspy from a case of strep throat. “Is that black lighter in there?”
“Black lighter?” he said.
“I got a sore throat,” she said.
“I don’t see it,” he said of the lighter.
“I got my back surgery,” another man said. “I hope it takes this time.”
An hour later, Spencer was home again. His knee was hurting once more, as it had on and off ever since he fell from a roof during a construction job two years ago. He’d never had it checked out because he’d never had insurance, and he didn’t mention it now because everyone at the house seemed worse off than he was. His mother, Karen Ruby, 60, who has cirrhosis of the liver, was sitting at the kitchen table with her head in her hands, saying, “I don’t know when I’m going to be able to get back into church.” His stepfather was stooped beside her, next to a wheelchair, smoking a cigarette. His girlfriend, Tasha Harris, 34, a thin, ashen woman whose back was often thrown out, was upstairs in the dark after leaving church early because she hadn’t felt well.
“I need angel food cake,” his mother told him before he headed out to the store. “Write it down.”
“Angel food cake? All right, I’ll be back,” he said, walking toward the door.
“I feel like crap,” said Harris, who had come downstairs to see him off.
“I’m sorry,” Spencer quietly told her, then went outside to his truck and pulled onto the road.
This is how Spencer spends most of his days,
ferrying to the dollar store and back, collecting soda, cigarettes and
whatever else his family may want, and consoling them when he’s around.
Most days he doesn’t mind. He likes feeling like the strong one when it
seems as though almost everyone he knows is either applying for or
already on disability. Just the night before, during a family dinner, it
had struck him again.
“She walks, and it breaks her bones,” his cousin,
who applied for disability after a nervous breakdown, had said of
another relative receiving disability.
“She falls a lot,” added his aunt, who collects $733 monthly in disability checks because of back pain.
Spencer, listening to the conversation, had looked
around. At the table was another cousin, who has bipolar disorder and
receives $701 per month. Beside her was her boyfriend, whose mom had
applied for disability, too. Spencer glanced at the ceiling and sighed.
“The whole world is on disability,” he said.
“It’s a tough world,” someone else said.
And now that world was spread out before him as he
drove through downtown Beaverton, past a value store, a post office that
closes at noon, a bank that shuttered during the recession, a gas
station that hasn’t been open for as long as Spencer has been here.
He saw a large roadside banner that said, “APPLY NOW
IMMEDIATE OPENINGS,” and cursed to himself. He didn’t know how many
times he’d gone in that upholstery factory and asked about a job, any
job, and was turned away. He saw another factory, this one an equipment
supplier, where he thought he’d need an act of Congress to get hired. Up
ahead was a horse-trailer shop. Three consecutive months he had gone
through the door, and each time they’d said, “Next month, try us.”
Meanwhile, he tried to sign up for a welding class at a community
college, but failed the enrollment math exam.
He pulled up to the Piggly-Wiggly. He collected cake
mix and three 12-packs of Mountain Dew for Harris, who he knows can go
through 24 cans in a day, and was driving home, passing everywhere he
couldn’t get a job, when he thought of another opportunity. There was
still that place that might need help with welding, a skill he’d picked
up after he lost his roofing job. He had told himself he’d go first
thing on Monday morning. Arrive by 8:30 a.m. Show the enthusiasm and
dedication of someone worth hiring.
Walking back into his house, he placed the cake mix
on the counter and heard his mother, who was in her room, with the
curtains drawn and the television on, holding an unlit cigarette.
“Black lighter?” he said.
“I got a sore throat,” she said.
“I don’t see it,” he said of the lighter.
“Me and Gene, neither of us got a lighter now,” she said.
He began placing empty soda cans into a plastic bin
and clearing the kitchen table of the dishes from the night before, then
heard Harris at the bottom of the steps.
“Baby?” she said. “My head is still killing me.”
“I got you something for your headache,” he said,
handing her some medicine and a 12-pack of Mountain Dew, and went back
to the kitchen.
“Desmond,” Harris softly called after him.
“Yeah?” he said, returning.
“Do you have a cigarette?”
He gave her one, finished with the kitchen, then
limped to the living room. He lowered himself onto the couch, his knee
hurting worse than earlier, and flipped on the television.
Something had to change. Everyone in his life has been telling him what that something is.
You’re hurting more and more, his mother said. And not getting any younger.
There aren’t jobs for you here, a friend said. Think that’ll change anytime soon?
We all need help now and again, his girlfriend said. Don’t be ashamed of being on disability.
You’re a grown man, his stepfather said. Bring in some money.
That was what Spencer was thinking about — money,
and not having any — when one day Harris found him sitting alone on the
back porch in the quiet, going through another cigarette. “Checks are
in,” she said of his parents’ monthly disability payments, which are
cumulatively worth $3,616 and support everyone in a house that, at that
moment, was low on just about everything.
“We’re going to the store,” Harris said.
“How you getting there?” he asked.
“The truck.”
“It ain’t got no gas, though.”
“I got to take your mom to the bank.”
“Maybe she’ll loan you 10 for gas.”
Gene Ruby was at the computer when Spencer approached him. The question came quickly and quietly. “Could I borrow 40? And give it back to you right here soon?” he asked. “I promise.”
A few hours after pocketing the money, Spencer
climbed back into the truck Gene made the payments on and started it
with the gas Karen had paid for. Harris got in beside him. They had been
together for seven years and rarely disagreed, except for that day two
years before when Harris said she was thinking of applying for
disability on account of back pain. He told her not to do it. People
would look down on them. They would find jobs. Don’t lose hope.
A light blinked on the dashboard.
“Transmission’s hot,” Harris said. “I told you it did that to me the other day.”
He pressed down on the accelerator.
“No, don’t do that,” she said. “Just put it in neutral and coast. Try not to mash the gas at all.”
“We’re running it into the ground, is what we’re doing,” he said, lighting another cigarette.
Harris looked at him. She could tell he was getting
frustrated. Just about everything these days made him that way. He had
begun complaining more, not just about the truck or the pain in his
knees and hands, but about all of Lamar County. He told her there would
never be jobs here for them. Maybe she had been right about applying for
disability. His injuries weren’t getting better, and he wasn’t getting
hired, and how much longer could he ask for help with groceries? Help
with gas? Help with transportation? Help with everything?
He moved the truck out of neutral and back into drive. The store was
20 miles up the road in Hamilton, the largest town in the area, with a
population of 6,814. Harris’s brother and his wife lived on its
outskirts, and in the falling light, they went to visit, pulling up to a
tidy mobile home set beside a large field. Harris’s sister-in-law,
Chastity, who was working full time at a calling center, came outside.
Then followed Harris’s brother, Josh, 28, broad-shouldered and
shirtless. They handed a plate of barbecue pork to Spencer and Harris,
both of whom had skipped lunch that day. The plate went back and forth
between them.
Spencer and Harris finished the barbecue, hugged
their relatives goodbye and got back into the truck. He drove to a strip
mall that had a Shoppers Value Foods, a Check Into Cash and a title loan
shop. He glanced at a sign outside a Sonic fast-food restaurant: “Now
Hiring All Shifts.” He sometimes considered applying for a fast-food
job. But how, after making $20 an hour at some jobs, could he take one
paying $7.25? He parked and went inside the grocery store.
“Yeah,” he said quietly. “Yeah, I don’t think it’s getting no better.”
An hour passed, then another, and Spencer stayed on the couch. He would not apply for the welding job today. He wanted to focus on securing disability.
He returned in torn jeans and, with nothing better to do, went
outside. He limped to the truck and fiddled with jumper cables. He set a
fire inside an iron bin and burned some trash. He inspected a sheet of
aluminum he had found, wondering how much he could sell it for. He
walked into the woods and walked out. He looked at the road. A car
hadn’t passed in a long while. It was 1 in the afternoon. The day
already felt over.
BLOGGER'S NOTE:
And the real crime is that the Wall Street THIEVES who brought all of this down on the entire country, are still walking free.
“I just went and got a job at Wrangler,” Josh said of a distribution center in nearby Hackleburg.
Spencer stopped eating. He looked up.
“Is that right, man?” Spencer asked, and Josh
nodded. “That’s great. I’m proud of you. Man, I’m happy about that. I’m
happy you got that.”
“Me, too,” Josh said. “It pays good.”
“Monday, I’m going to go back to that shop where
. . . I heard they need help,” Spencer said. “Hopefully, I can weasel my
way in there.”
“You can,” Josh said. “Put it in your mind, and you can do it.”
“I had an inspiration book,” Spencer said. “You wake up and put it in your head: ‘God’s got my back. I got this job.’ ”
There was a moment of quiet.
“I’m glad you got that, man,” Spencer said again. “I’m proud of you.”
“Sometimes, it’s just the right place at the right time.”
Spencer was looking at a piece of paper on the
coffee table. It was the number to the Social Security office his mother
had given him. He and Harris sat on the couch in the living room, and
she handed him a telephone.
“You got to call,” she said.
“I’m nervous,” he said.
“Don’t be nervous,” she said. “They’re not going to reach through the phone and get you.”
He didn’t say anything for a moment, just held the phone.
“What do I do and say?” he asked.
“Call that number and do whatever they tell you to do.”
He took in a breath and exhaled slowly.
“I guess I’ll call,” he said, punching in the
number, and then came a voice on the other end, with that question
again, the one he rarely had the courage to ask himself:
“Are you disabled?”
“Yes, ma’am,” he said.
“How long have you been disabled?”
“Two years.”
“How are you supporting yourself?”
“Living off my mom.”
“Is this a permanent disability?”
“Uhh,” he began. “I don’t think . . . ”
He looked at the floor and leaned forward.
He scheduled an appointment for an interview at the
local Social Security office the following month. He hung up, stood and,
appearing dazed, told Harris, “I didn’t like it at all.” She gave him a
sympathetic look and left him alone on the couch.
He was there again four days later on a Monday morning.
The entire house was dark. Spencer was in his
pajamas, watching television. Harris was soon beside him, also in
pajamas. “I think I’m getting sick,” she said, and he didn’t answer. She
went to another room and came back with Ruby’s laptop, which she uses
every Monday morning to look at job listings.
“I ain’t checked it in a week,” she said.
“Oh my God,” he sighed, flipping through channels.
“Do you know anything about pop-ups?” she asked, looking at the computer. “Man, I’ve had, like, a hundred pop-ups.”
“Look, the new ‘Walking Dead,’ ” Spencer said, coming to another channel.
She pulled up her email and clicked on one that
listed service positions within 25 miles. “Okay,” she said. “Here we
go.” She saw three postings: “Customer Service/Telecommute,”
“Telecommute Consultant” and “Product Tester.” She didn’t investigate
any of them, instead going back to her inbox. She found another email
with more listings.
“Erber?” she asked. “We don’t even have an Erber place around here.”
“Uber,” Spencer said.
“Uber, Erber, whatever,” she said, closing the computer.An hour passed, then another, and Spencer stayed on the couch. He would not apply for the welding job today. He wanted to focus on securing disability.
“I got to go get dressed,” he said, looking down at his clothing. “What a loser.”
BLOGGER'S NOTE:
And the real crime is that the Wall Street THIEVES who brought all of this down on the entire country, are still walking free.